I never know how to answer when someone asks "How are you doing?"
The short (sometimes truthful, sometimes not) answer is "We're good!"Here's the long answer.
Emi is our chunky, but tall, nine month old. She is currently in occupational, physical, and speech therapy. We're also in a mommy and me swim class, which is more for fun since she enjoys the water so much. We're not swamped with appointments, but there are enough to keep us busy! We're working on helping Emi hold up her head and sit up on her own. We're also trying to help her reach for toys and provide extra sensory stimulation. She doesn't love solid foods but she'll happily eat broccoli, avocado, and peas. She has three teeth and one on the way! She loves being in the water, her red ball, hearing her own voice, and nursing. She dislikes being hot, teething, and exercising. She loves both of her parents, her grandparents, and Sophie the giraffe.
Some days are really, really good. I've been enjoying the beautiful weather, friends and family coming to visit, going on outings, and honestly just loving this California summer. Other days are really hard. Sometimes I sit on my kitchen floor and cry and feel overwhelmed and get angry that her seizures just won't go away. I still feel a lot of sadness that having this disorder is Emi's reality and I think a small part of me will always feel that way. But I'm also genuinely happy right now. I love Emi and feel lucky that she came to us. I love that she's still my squishy baby and that I get to cuddle her. I'm not really sure how my body is able to handle so many emotions but somehow, it does. Overall, we're trying to be positive and optimistic. Since the severity can vary so much from child to child, we're just taking one day at a time. We love our little lady and just like every other parent, we want to do as much as we can to help her be successful. And even though I don't know how to answer sometimes, thank you to all who ask after us and show so much love.
Chris made this beautiful video and I thought I would include it. I love the way it expresses how he feels.
